THIS IS MY STORY
In 2017 I gave birth to my first born, a beautiful healthy baby boy and just like that I became a mother. However, over the next 6 months I began to lose my son. His abilities, his personality, his giggles and although repetitively I was told he was "ok" by the pediatrician's office, I persisted.
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Almost 6 months later, in July 2018 my sweet infant son was diagnosed with the incurable brain condition, Hydrocephalus. We went from the joy of planning his first birthday party to planning brain surgery and beginning a battle of a lifetime.
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I am disheartened to say that there is an immense gap between the healthcare system and patients. I want to bridge that gap for anyone out there navigating the healthcare system. No one will ever know you or your loved one as well as you do and never doubt that.
What I discuss is not found in any parenting book or doctor's office. Throughout my son's diagnosis I craved a resource to navigating motherhood as a medical parent. I hope to be that resource for you.
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In life you have two options to lay down and let life steam roll you or stand up and fight with all you have. I choose the latter.
In my podcast I will educate, support and empower you to rise up and advocate.
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BIO
Rachel is a certified Family Nurse Practitioner with over 13 years of experience working at one the most prestigious hospitals in the world. She is a former critical care nurse and nurse educator; teaching in both the clinical and classroom setting.
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She spent several years as the medical editor for a patient wellness magazine that empowered people to take control over their health and wellness.
Rachel was inducted into the national nurses' honor society Sigma Theta Tau in 2013 and in 2015 was a national conference presenter at the American Academy of Ambulatory Nursing conference.
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In 2019 she founded Hope For Hydro, a non profit dedicated to improving the lives of those suffering from hydrocephalus by supporting research and innovation. She currently serves as the Executive Director, truly turning her pain into a purpose and fighting for all those affected by hydrocephalus. Her passion is guiding others' advocacy journey.
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